This is an incredible abstract from 2020 out of the UK that looks at the time to diagnosis and how that 8-10 year timeframe for a diagnosis creates a whole group of people lost in medical limbo trying to figure out what is wrong with them. Here is a link to the abstract.
All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items.
Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/
Here are some links to Amazon showing some of the items I discussed.
Uberlube - https://amzn.to/3i604N2
Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg
Biofreeze - https://amzn.to/33gygBS
Cane - https://amzn.to/3uN9fts
Heating Pad - https://amzn.to/3Bjd5vz
Weighted Blanket - https://amzn.to/36RCdi7
Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA
All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx